COOL: Preemie Bill of Rights
February 23, 2012
We are so excited to partner with the Foundation for Premature Infants! This organization, headed by Michael Litten and supported by a team of developmental therapy professionals, is working to provide every preemie with the chance for developmentally appropriate care in the NICU. Check out their “Preemie Bill of Rights “ here.
For more information about the Foundation for Premature Infants go here.
RSV Season Advocacy: Tips Sheet, Survey, & More
February 21, 2012
Sadly I have heard of too many parents with preemies that were denied the Synagis shot and despite their best efforts at hand-washing, isolation and more, they still wound up in the hospital with RSV. As a parent that suffered through a winter with RSV isolation and more but was lucky enough to get the Synagis drug for my daughter, I find this an insult to families everywhere and I am doing my part to speak on behalf of these vulnerable families.
Action Items:
1. Please spread the word about our “RSV Parents Tell It Like It Is” survey here.
2. Please download and use your social networks to get out these tips for Access to Synagis .
